"All our dreams can come true, if we have the courage to pursue them"

MY AUTOBIOGRAPHY OF MS

The dates on the links below are when the updates to my autobiography / health diary were completed. The updates usually cover the time period since the previous one. There is overlap in what I wrote, as the health diary updates were originally written for a different site than this one. There are some specific topics which are named rather than dated, and these have been put in approximately when I was doing them / they occurred.

1996 - 2000

March 2001

September  2002

Florida

My life to 2002

April 2003

June 2004 H

July 2004 H

January 2005 H

February 2005 H

September 2005 H

September / October 05 H

November 2005 H

March 2006 H

June 2006 H

September 2006 H

April 2007 H

September 2007 H

May 2008

July 2009

September 2011

September 2012

June 2013

December 2013

May 2014

Unpublished articles

January 2015

June 2015

January 2016

March 2016

August 2016

February 2017

July 2017

December 2017

August 2018

April 2019

November 2019

March 2020

November 2020

April 2021

Home

Sylvie - My Autobiography

Inc Health Diary

Sylvie in

the Media

How to

Cope

with MS

Help

dealing

with MS

Diet,

Nutrition  

Exercise

CCSVI

Sylvie My Poems


My

Family


Useful

Links

September

2021

2021 Day to Day Reality

January 2022

My Book

July 2022

December 2022

May 2023

December 2023

Rest In Peace

Remembered

Memories of





Updates List

I've just opened Sylvia's memoirs, saw when I got my friend aka to sing happy birthday to Sylvia and I've cried again cause I can't believe that she has gone, you know that i loved Sylvia with all my heart, she was a strong and beautiful lady, I'm glad she had a good send off, I will always think about Sylvia and you and Marcus forever, beautiful memories.

Verni


I think I have lost count of the number of times people believed Sylvia to be my sister, which wasn't helped by the fact our addresses were about 95% correlated and our fathers worked in almost exactly the same place. That did rather confuse things. I can remember her well and also her cat James/Jimmy often coming to visit. Many years on I have also before read her book with enjoyment and certainly can see many familiar names there including James the cat himself. I'll certainly look forward to reading it again.

Tim Brown

SYLVIE

WRIGHT

REMEMBERED

2

This page is the continuation of the collation of messages in regards to Sylvie that have been received since she passed.







This first remembrance isn’t actually one as it was actually sent to Sylvie by Alex the day before she died, so Sylvie heard it, I think it is worth including as it sums up what Sylvie meant to Alex.


I want my friend and people who are important in my life to know, how important they are to me and you are one of my really important friends, you’re the first kind of MS person that I really became friends with, and we were like partners in crime. You know you have such a love of life, interest in and love of people and you were also a real inspiration and support to me. I wanted to say how thankful I am for that. Your also interesting, quirky, terrible jokes. Fantastic mum and just a real force of nature, your determination and your courage and your strength and everything is just fantastic and really, I know it sounds corny, but kind of an inspiration to me.


I know it doesn’t seem like that because we don’t talk or visit enough, but I still think of you, talk of you. You are part of my life story and a very important part…. I wanted you to know this, lots and lots of love.

Alex

Sylvie, a great free spirit, even though trapped for many years in her poor dear body.

The Pyrahs


I have 2 particular memories of Sylvia. One was her smile, which seemed to be there so much of the time. The other was her enthusiasm for riddles, jokes and poems. She could produce a generous chain of riddles and jokes off the top of her head. When I went through the book of her writings, she did appreciate the time we spent on her poems. I’m glad you and Sylvie were able to visit my new home, it means my last memory of Sylvie is such a happy one. Keith Austin


Sylvia had such spirit to make the most of her life.

Mary Balbi


She was brave and amazing, that despite all the obstacles she did so much with her life.

Linda and Michael Brown


What an amazing sister and mother she has been - so bravely facing this long and devastating illness. We shall remember her for her bravery and for all those wonderful jokes. Peter and Joan Bear


She was a great sister and great mum…  She will be greatly missed by us. She is now free from all her physical restrictions and I hope her spirit is soaring high. Few young girls (possibly 8 or 9 years old) can boast they broke the little finger of a friend. That’s what happened to our son Martin when they both collided in the back garden chasing after a ball. Marilyn and Glen Vickers

I was diagnosed with very aggressive MS in 2002, and have been a wheelchair user since 2003. Back then Sylvie was a regular contributor to the MSRC message boards - always so generous to others with her support, empathy, time, advice and wide ranging MS holistic knowledge. We became online friends….  There was a vibrancy and dynamism about Sylvie that forever instilled empowerment, fun and positivity to all who knew her within the MS community, and beyond. Sylvie had a brilliant ‘no stone unturned’ approach to life itself as well as to the reality of living with MS.


Later when Sylvie and Steve visited my wife Kirsten and I in Scotland I remember them quoting from a favourite comedian, the late Bill Hicks; life is a ride they would say, life’s just a ride. Always stuck with me. Two brilliant souls living life to its brightest and fullest, amidst travels and adventures, the twists and turns, the ups and downs. Their most treasured joy in life of course forever being Marcus, now Emerald.


Sylvie’s Living with MS website and he ‘My Crazy Brain’ book are a beautiful legacy from such a unique and insightful person. I know the website and book will both continue to help inspire and empower countless people facing similar challenges, which is a comforting thought at such a sad time. Still giving, even now.


As a disabled person such as myself, with my wife Kirsten, as my 24 hour carer, I do have some insight into the selfless sacrifices loved ones make and the intense pressures involved through circumstances in caring for those closest to them. Sylvie, was the first to admit in correspondence to me that she could be ‘a nightmare’ with her carers, (paid or unpaid) because of all she was going through in the darkest times. I know how enormously grateful she was…. particularly after Steve’s passing…… for (carers and family) always being there in every capacity in times of such need.

Graeme (& Kirsten) Brown

WORLD

TRAVEL

4th May 2024

Feel free to e-mail

Mail: brown.websites@gmail.com?subject=May 2024 Remembered

1996 - 2000

March 2001

September  2002

Florida

My life to 2002

April 2003

June 2004 H

July 2004 H

January 2005 H

February 2005 H

September 2005 H

September / October 05 H

November 2005 H

March 2006 H

June 2006 H

September 2006 H

April 2007 H

September 2007 H

May 2008

July 2009

September 2011

September 2012

June 2013

December 2013

May 2014

Unpublished articles

January 2015

June 2015

January 2016

March 2016

August 2016

February 2017

July 2017

December 2017

August 2018

April 2019

November 2019

March 2020

November 2020

April 2021

September

2021

2021 Day to Day Reality

January 2022

My Book

July 2022

December 2022

May 2023

December 2023

Rest In Peace

Remembered

Memories of





Updates List

Memories page 1.